Saturday, March 29, 2008
Technology is Worth The Effort: Part Two in a Series
Part 2 of 3 in a Series:
When we say "Do your homework" what do we mean? Well it covers quite a bit of ground.
1. Know the law is in your favor
For starters you need to look at the law and know that your child has, by legal mandate (FAPE and IDEA), the right to the same education as every other student. Whatever assistive technology can be found that will support the child so they can succeed and access the curriculum with all the other students, that technology is required to be provided for that student - especially once it is written into an IEP. Which brings us to the second item to research - looking at the support product.
2. Look at Vendors and Costs
This is the particular technology needed and any cost you can find on it. You can look at AT sites to see equipment descriptions and prices, but if you aren't sure even where to start, what do you do?
3. Find local support
Use your special education department in your school district and your school counselor to find out what county and state agencies might supply an assistive technology specialist that can help in assessing your child. Many times an educational cooperative or service district will hire therapists and specialists under a contract paid by a kitty of pooled funds from all the districts using the services. This means that you can request an evaluation be done for your child and these folks should be scheduled to come assess.
4. Look on the Web for Parent Groups and Forums
There are many special interest groups on Google and Yahoo and AOL that deal with specific conditions and disabilities. You can probably tap these to find out what people are using as an AT support for their children.
5. Find Blogs
This blog you are on is one of many on learning disabilities, physical conditions, and assistive technology. You will find adults with disabilities that have blogs and talk about what they use for AT. They will share links to other blogs that you can go to and read also. There are specialty blogs that look at very specific sub-categories of disabilities or technology. Once you find some blogs with good lists of links to other bloggers' sites, you will find that one leads to another and the information becomes mammoth. Just try typing "learning disability blog" into a Google and see what you get - pages and pages! Get more specific with the name of the disability in your search and it should get more focused.
6. Find other parents that have children with the same issues
I have a friend that told me when he was 21 and a new father of a LD child with a certain syndrome, he and his wife went and saw another family with a child older than theirs that had the same condition. He said it was so good for him to see this older girl and how she related to them. He had been imagining the worst for the future and after he saw this girl and how she was, he thought, "I can do this." He was encouraged to see that the future, although not exact, at least was manageable in his mind. That went a long way towards peace of mind.
These are just some general tips to get you started. I hope that this gives you a jumping off place. If you would like some specific ideas on where to start looking, you can email me at my address on the sidebar. If I know of any sites to point you towards, I'll try. I have one more post in this series to share next time.
(If you wished I had links to resources in the text above, there are just so many I could not even begin to dive into it here. I am working on an AT support multi media bundle at a very low cost that will have specific training on these steps, an overview of AT basics with hyperlinks and illustrations as well as a set of tutorials and videos. There will also be a do it yourself kit included with projects you can design and build with all free software resources. It has been a huge undertaking and will save folks a lot of Internet search time, but it is taking me a lot of time to get collected and edited. I have been trying to get it ready to be available in April - we'll see how it goes.)
All the best to you,
Lon
Thursday, March 27, 2008
New Voices for Tango! and Interview Coming Soon
New Tango Version and VoicesMonday, March 10, 2008
You are a Valuable Resource

Wednesday, February 20, 2008
Being A Successful Parent Advocate Series; Principle 3: Be a Contributer not an Interrogator
This is the third principle in a series I have been sharing on parent advocacy. Some of this comes from my past 25 years in education and some from interviews with parents that I meet through work, conferences, parent meetings, day care, my son's school, etc. I have been honored with the pleasure of meeting some wonderful parent advocates and our principle this time is one that I have observed being practiced by these folks more than ever being spoken.What it means to be a contributor:
A contributor is someone who adds to the efforts of others towards a common goal. I see parents more often than you might think, who expect all the effort to come from a school team to meet educational goals and criticize them if they are not met. If a parent is a contributor to the process, they are doing many things. Here are some examples I have seen through the actions of successful parent advocates:
- Volunteering to spend time in the classroom as a helper once a week.
- Attending team meetings and being available to be in the loop on decisions that happen at school.
- Looking for grant and foundation money to obtain equipment and software needed in the classroom that supports modifications of the curriculum for their child.
- Looking for ways to contribute in the exploration of answers for treatment and special needs issues rather than criticize decisions that have been made without their input.
- Demanding excellence but being willing to share ideas, time and some personal expense if possible to see it attained.
- A realization that they, as parents, are experts on their children's needs and behaviors at home, but also respecting the fact that needs and behaviors can be different at school and the staff and specialists may have conflicting reports that are still accurate.
The wonderful thing about these kind of advocates is that through their efforts, they have earned the right to share in the processes at their schools. They have the right to be in the process anyway, whether they know it or not, but might be permitted by the school begrudgingly because of poor interpersonal relationships. If done right, the relationships at school can blossom so that the parent is seen as a positive influence in the process and their opinions are respected.
How do you think you are perceived by the staff at your child's school? Are you an antagonist and an interrogator when it comes to what is happening at school for your child's services? What could you do to improve the situation? What areas above do you do well? What areas could you possibly improve in?
Now I know there are those of you out there that are saying, "Yes, this might be true, but you don't know what I go through. I have to deal with a principal that doesn't get it when it comes to IDEA and the rights of disabled and special needs children." You might say, "The staff at my child's school always get their defenses up when I come around and I can't get through to them." You could also be one saying, "I have been dealing with incompetency throughout the whole school career of my child's life. I have been patient but I am about to the point where all I know to do is use the "S" word...sue."
I am not an attorney and I am not about to start giving legal advice. I realize there are situations where being nice isn't enough. Still...I would encourage you to take a deep breath and look at the principles above. Compare them to your realtionship with your school. Look at where you do well and where you could do better. Putting some effort into these principles can go a long way to bring positive results that will be a win/win situation for everyone.I hope you are enjoying this series. If you know of anyone that might benefit from this post or my blog in general, please pass it on.
All the best to you!

Saturday, February 16, 2008
Being a Successful Parent Advocate - Principle 2: Foster Positive Relationships
I am so glad to have you back for Principle 2 in this series on Parent Advocacy. The first principle was research, studying, and reading up to keep informed on new developments and support. Today's principle, number two, concerns fostering positive relationships.Fostering Positive Relationships
I have worked with a lot of parents and administrators. I see some interesting dynamics at times with the relationships between these two sets of people. Sometimes the two see each other as support - the parents looking for the principal to demonstrate the intensity of an advocate for their child in getting all the services needed, and the principal, looking at the parent as the key to support and reinforcement at home to implement the strategies that will help the student improve at school. Both sides can be self-serving, but at least both have a common concern at heart, and that is the child.
Then there is the adversarial relationship. I have heard stories from parents at conferences and group sessions, where the parents refer to the principal and therapists as cold hearted and threatened and unwilling to listen. I don't work with any principals or staff like that in my service area fortunately, but these stories do happen.
When I hear stories like that I think about what my reaction would be if I were a school administrator and I had a parent who was knowledgeable and in my face about what I was going to do about her son. I would say,"You are my new best friend! I need you to assist in the process of developing what is best for your son. You need to be an integral part of our team for your son." The point of view taken by the leaders in assistive technology about the team process is that parents need to participate and be a part. Their participation is essential.
Positive should ALWAYS be the first line of defense
When you are looking at going to school to advocate on an issue, look at how you can share your point, and in that point make sure there is an invitation for collaboration. That means that it is not "my way or the highway." I know that I am much more apt to collaborate and work with people who listen to my ideas, maintain a calm affect in conversation and are supportive and have good things to say. On the otherhand, I have a hard time listening and contributing to discussions with people who are always on the defensive and looking for a comment or decision that "confirms" their pre-determined belief that, "No one really wanted to listen to me or do what needs to be done anyway." When people enter into dialogue with a pre-determined notion that they are going to have to fight, it adds an energy to the conversation that has the potential to create exactly what you expect.
Take a minute and think about the nature of your conversations with teachers, staff and administrators around you. If you are a therapist or teacher, do the same thing but think of it in terms of your communication with parents. It can work both ways. Are your conversations collaborative? Do they allow room for others to share their input? Do you strive to build bridges to understand others and work on solutions without stress and negative energy?
One thing we as therapists and specialists have to remember is that even when we don't get along with someone, we still need to give them a level of respect. There is also a little thing called IDEA and a federal mandate! No matter what I think, I have to bite the bullet, smile and do what has to be done to be in compliance. I would hope to see the same amount of determination on the parents side to work together so we could both come up with a "win-win" situation. When we add the child into the picture it becomes a "win-win-win" situation!
Being positive and working on solutions together allows for much more success. Being able to think this way in your relationships, problem solving and conversations, is an aspect of what I call the "No Limits Lifestyle." I wish you the best as you strive for healthy collaborative relationships. When you take the time to create these positive relationships, you are making advocacy a much easier task.
I hope this gives you a little support as you work in potentially high-emotion dialogue. Keep checking in for more tips on the next blog post. Please refer this blog to friends that could use the information.
All the best to you!
Sunday, February 10, 2008
Oregon State-Wide Assistive Technology Gathering, Start of a Busy Week.
I am in Portland at the Oregon state-wide assistive technology meeting, February 11th and 12th. Monday, we will be presenting updates on our different regions and services. There will be a presentation on NIMAS the new standard in digital text and we will also look at the OTAP (Oregon Technology Access Program) website. It is on my sidebar under important links.I will be posting some of the highlights as far as ideas and news from the meeting that I think might be helpful to you. I have a stock-pile of great other topics and information to post over the next couple of weeks that has been coming in and I will get to it all eventually. I am having to start keeping a log of notes and lists so I don't forget things!
On Wednesday I have a table at a career showcase for teens from schools to explore different career options. I am thinking that it might be a great place to do a podcast - interview some teens on what their definition of assistive technology is - what do you think? I have some fun things to set up and let them explore for that day. I will fill you in on that day the end of the week. I have to get the podcast thing going. I have a long list of podcast projects to get recorded and archive so I can start posting.
There are lots of great things happening behind the scenes right now that are going to be exciting to see take shape over the next few months so keep checking in!
All the best to you!
Saturday, February 9, 2008
OT and PT Supports for Disabled Children
I am beginning to find that one of the pleasures of writing on my blogs is the great email I get. I am beginning to hear from people through my email. It is so exciting to think that we can reach out to each other and support what others are doing. If you have a blog on children, disabilities and related services please let me know. You can email me if you would like. I will be sharing the information I am getting from those emails from time to time and making a "My Blog Family" listing so that you can visit their blogs and sites too. 
Thursday, February 7, 2008

To top off my day, I went to my email to find notification from “Ezine Articles” (see the link in my sidebar). I had submitted my first article a couple of days ago and was hoping it was accepted. I would be on the beginner/basic level. The email said that I had been accepted into the expert category on my first submission and that it would be on the high traffic home page. It was also being syndicated out on their exclusive email to subscribers. I was given the icon on my sidebar to post advertising I was featured in Ezine Articles. So you can see my new “trophy” over there!
Life is good. I am tired from a busy and prosperous day. I wish the best for you and ask that you do yourself a favor - be generous and gentle with yourself. Give yourself some slack and find something great to celebrate in your day. Tap into that “No limits Lifestyle”.
All the best!

Wednesday, February 6, 2008
Virtual Magnifier and Lightspeed Assisted Listening: The Eyes and Ears of Assistive Technology
Yesterday Was "Eyes and Ears" Day: 
Monday, February 4, 2008
Free Guide for Assistive Technology is a Great Support from WATI
WATI is a great resource!
Friday, February 1, 2008
OTAP is Oregon's Best Resource for Disabled Children
Oregon Technology Access ProjectWednesday, January 30, 2008
Tuesday, January 29, 2008
How to Make a Switch Access Help Light
We recently needed a light to velcro-mount on a lap tray with a switch for a student to indicate when he needed help. This light by CatEye is just one of many that can be adapted for switch access. We were fortunate in that when we let our local bicycle shop know why we needed it, he sold it to us for $5.00. Thanks Pendleton Bike and Board!They have a cool website - check it out...
Now I have had my day of using a soldering tool, wire and little copper pieces to make a battery interrupter, but I would rather recommend the store-bought kind. They aren't that expensive (compared to buying a pre-adapted device) and they are sturdier and save a lot of time. If you were blessed with a God-given gift of quick efficient soldering, then I am truly envious! For the rest of us there is the done-for-you-version.
A good source for battery interrupters of various sizes ($9.95 US) can be found at Enabling Devices. The notching file to make a hole for the wire to slip through on the battery cover can be found at ablenet ($9.00). Ablenet has the interrupters too, but they are $12.00. What I did:
I notched the lid of the light so the wire could slip through and placed the metal interrupter disk between the positive end of a battery and the wall with the metal contact. In order to get the light to stay on with a switch connected, I had to place a little metal nut over the rubber on/off switch and use some black electrical tape to hold it down. This way, when I press the connected switch, the light is already on and the switch joins the connection so the light comes on. We are using a leaf switch or ribbon switch that bends easily for this student to access the light.
Mounting: The light comes with a nice slide in bracket so you have something to start with to adapt to a wheelchair bar or velcro on a laptray etc. This is where you have to be creative based on the special adaptation you have to make.
I think this part of assistive technology is one of my favorite parts because I love gadgets and love to tinker. If you have any ideas or successful adaptations you have made let me know or post about them. I would love to share!
All the Best to You!

Friday, January 25, 2008
A Mentor to Recognize

Brian taught the assistive technology course for my Masters Degree, Technology in Education from Lesley University in Cambridge, MA. He probably doesn't even remember the conversation, but some of us went out to lunch between class sessions and he asked me about what I did. I was working at our Educational Service District doing professional development and technology integration in the classroom at the time.
"Do they know you know about assistive technology?" He asked.
"I don't think so, but I am interested in some of the applications of the software for remedial supports in the general education classroom." I replied.
"Well, I am just warning you. When they figure out you know about AT, it won't be long before you are running that program!" Brian said this with a confidence that surprised me.
Well Brian, you spoke like a prophet and your words did come true! I am in my third year overseeing the AT here in our region of the state. I served on a committee that managed our AT equipment loan program for about 6 months and then was asked to fill a position that had been vacant for a couple of years.
Brian has a unique interest in mind mapping. By graphically illustrating your ideas on paper, you can see patterns and themes to your thoughts and focus on where you want to go. I have been using this more significantly since I began planning to start blogs, work on some materials for free access and for purchase, start up a web site that I am working on to launch soon, and look at personal goals. Using this method and matching it to goals and success principles will have to be another blog entry for another time.
Check out Brian's Assistive Technology Blog and his Mind Mapping information. It is very intriguing.
Thanks Brian!
Thursday, January 24, 2008
Writing with Assistive Technology Supports
I have several students that are using writing supports. They are helpful for students that have difficulty writing because of finger deformities or injuries. These supports could as easily be used for folks that have arthtritis or conditions like dyslexia where the spelling is a challenge. Some programs have a virtual on-screen keyboard like Click-n-Type which is free. Click n type has a word prediction feature built in (a separate downoad from the keyboard) that will give choices to select to cut down on the amount of typing.

A powerhorse program that does all of the above and has a text to speech feature as well is Co:Writer by Don Johnson. This program opens a text writing window that floats above a MS Word document or whatever word processing program you want to use. As you type, you get word prediction underneath and when you type a period, the sentence is transported up to the word processing page. You also hear it read back to you. You can turn the speech off if you prefer and you can set the size of the text window, the number of words in a prediction list and how you want to select them.
There are other features like word banks under topics to load as a source for word prediction that make this an excellent program. At $325.00, it is a spendy tool, but if you want or need to write or want to find a support for your child to do homework assignments and papers on a computer at home, it is a worthy investment.Check these out.
All the best!
Lon
Wednesday, January 23, 2008
Sharing Assistive Technology Ideas for Everyone
I have been so grateful to the assistive technology community for the way everyone shares their expertise. Whether I am talking to people across the state of Oregon or at a national conference, people are willing to share from the wealth of information they have gained. They are more than eager to email a link, give information on a study or project and connect you with a specialist that used a particular device, program, etc.It is in that spirit that I am wanting to consistently post on this site. I can share what I am doing and what I am learning, but I can also provide myself as a resource. If you would like to know the answer to a question or have information to contribute, you can post it as a comment or email me at: lonthornburg@nolimits2life.com
I am wanting to support what needs are out there and I know that by doing so I am going to add to my knowledge in the process. It will probably also require my asking others to contribute to this blog also as needed. That can be good because it widens the network for communication.
I checked for my blogs on the Google search engine tonight and was able to get on the first page of searches for particular words, but I am going to have to do better with my keywords to get my blog out there where people can find it.
If you know of anyone that could use this site and is looking for information, please send them the link.
I am going to be posting about the software and tools I use on a day to day basis as well as surprises that come along so stay connected!
The best to you!
Lon
Saturday, January 19, 2008
Eating Pancakes

It is Saturday morning and it is time for pancakes.
My son is 5 and he wants a stack of pancakes. I just flipped a couple on his plate and he said, "I can cut them myself." He got out a plastic knife and fork and began to cut. He paused, "I can't really do it with two pancakes".
I finished cutting up his pancakes and he ate while I was sitting here preparing to post this morning. I knew there had to be a story and an analogy here somewhere. There are several things that come to mind so be amazed at how we can learn lessons from pancakes!
- When it comes to pancake stacks, our eyes are always bigger than our stomachs. My son could only eat half the stack. When it comes to teaching and working with kids and what I want children to accomplish, I usually want them to digest more in one trial then they can handle. I am learning to break down my objectives into smaller chunks - like the chocolate post I wrote in December - so goals can be accomplished with success.
- Instant isn't always best. In pancake mixes the "just add water type" usually are easy to make, but never taste as good as the "made from scratch" kind where you fluff egg whites to stir in, add real buttermilk, etc. How often do I choose the ready-made or simple tools instead of custom adapting materials or equipment to fit the exact needs of my students? I am learning to slow down and take the extra time for specific accommodations so the fit is better the first time around. This saves every ones time in the long run and the student ends up the winner!
- If you get preoccupied, pancakes burn. How many times have I made my son the first pancake and then have poured the next into the hot pan - only to get caught up in his butter, syrup, cutting and puring milk - and then smell something starting to burn and find my pancake's first side is a chocolate brown? I get preoccupied at work and things can sit on the burner too long and start to burn. Sometimes this is pondering over an adaptive piece of equipment - like a bicycle light that needs a battery interrupter put in and a way to mount it on a chair with a switch for a student to use for a help beacon during the day. (That one is a story in itself I will save for another day!) I can stew in my mind over a project so it is perfect until it never gets put in place - or takes way too long. If we get side-tracked on the path of goals with kids - focusing on the small stuff can start the main stuff to "Burn in the pan". Let's try and stop getting caught up in that cycle.
- Pancakes taste better when you add fun things to the batter. I like to add applesauce to my batter. Sometimes I add a really ripe banana, some vanilla and salt. I personally don't care for it, but some people like chocolate chips in theirs. My wife has a recipe for waffles that has part of a can of pumpkin, pumpkin pie seasoning and is very satisfying. In your teaching and adapting curriculum for students, try doing the same thing as you would do to pancakes. What in a lesson would be the equivalent to adding chopped walnuts to banana pancakes or chunks of peaches and pecans. The sky is the limit and I guarantee it will be a lot more fun!
- When it comes to cutting stacks - kids can think they can, but need guidance to learn how. I was glad to see my son have the confidence to try and cut his own food. Do you know how long we have been cutting up his food into bite-size chunks? This was a landmark for me today! When he said he really couldn't do it with two pancakes, I should have helped him to do it. Instead, I took the utensils and did it for him. He had the confidence to try but I didn't do the follow-through. It was just faster to do it for him. When I am out in the schools I see a big issue that probably goes on all over the country. We have thousands of assistants employed to work with disabled children and they are doing everything for the student. They are well-meaning and motherly, but there are some tasks that students need to learn to do on their own even if it is a struggle to perform. If at all possible, these assistants need to help them "cut the stack of pancakes" instead of doing it for them because it is faster. I have been more aware that time is one commodity that the disabled have a lot of. Why not allow them to use it doing something for themselves - even if we have to endure watching it take 5 times as long as it would take us to do it.
O.k., I could go on, but I'll stop for now. I think you get the point. I hope you have a great three-day weekend as we approach Martin Luther King Jr Day on Monday. I hope you can take some time to analyze your work with children whether it is as a teacher, specialist or parent and find out where you are with these "pancake principles". And while you're at it, make up a crazy combination and share it with your family. Then share it with us!
All the best to you!
Lon
Image credit: http://www.kidsorganics.com/Breakfast%20for%20Champions.htm#pancake
Monday, December 3, 2007
Drawing on the Wall

Friday, November 30, 2007
A Birthday Voice
Today a rare thing happened that will be a memory I will hold for the rest of my life. The event was so heart-warming and also so sad at the same time that I have to share it with you.
Tuesday, November 27, 2007
There Are No Limits To Learning!



